What do we do ?
The activities of the Irish MPS Society are mainly aimed at providing
a support network for those affected by Mucopolysaccharide
and
related diseases.
Through meeting and participation in local, national and international
forums, the society aims to raise much-needed funding into the research
of treatment for those suffering from the MPS diseases, and also
raise public awareness to the existence of these rare genetic syndromes.
Many people's first knowledge that MPS syndromes exist is when a
child or relative is diagnosed with the condition. Our society hopes
to change that, while also providing those people with a support
network.
On the broader front, we strive
to ensure that those affected are recognised for their abilities,
not their disabilities. Although society is becoming more tolerant
of people who are different, a lot of work has still to be done in
reminding people that although we may be different, we do not want
to be treated differently.
Our activities include:
- Family Days & Weekends
- Clinics & Research Updates
- Public Awareness Campaign
- Fundraising Activities
- Representation at International Conferences
Our
primary fundraising activity each year is the sale of MPS Christmas
Cards, and we are extremely grateful to those who have supported
us in the past. We are also extremely grateful to those who have
organised fundraising and awareness activities and participated
in events such as the Dublin City Marathon to help our society.
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